2012 . 10 . 09

Days like this are from some other dimension. How you can be feeling ok - usual fatigue-ridden, painful, forgetful day - then horrendous, can't do a thing day.

I can't comprehend a crochet pattern today - this was the first indication as I sat with a cup of tea and wanted to work on a holiday gift. I did the same row five times. I'm pretty sure it's still not right, but I can't be certain. So I gave up. This is the theme of the day - give it a try, try it again, give up and do something else until you've exhausted most of your options given the mobility issue. Beer anyone? Pain relief and relief from wishing to do any other productive thing.

Next my leg decided it doesn't belong to this body. It drags behind me when I try to walk or flops down and at least holds a little of my weight. It's an all day cane day.

Then I try to ask my hubby if there is anything I can do to help him - caboladoamiaenmtmekaeoianteontoinatoientlak - nevermind :(

Not a shot day, but injection sites from the last week are itching intensely - another side affect of Copaxone.

I had conversation with the neuro at Hopkins today - he's ordering more tests. My mission is to get them done and results before my Nov 5 appt. I ordered additional medical records as well. I hope he has an answer on Nov 5.

I let him know about a conversation I had with my neighbor's sister. She has symptoms almost identical to mine, and was diagnosed with Multiple Sclerosis, as I have been. It was later discovered that was she actually had was late disseminated lyme's disease. The disease has caused irreversible neurologic damage. Now under control, she is still unable to work or do much each day. She spends her days after treatment much like I do now - a few hours at a time.

I researched this, and one key difference in our cases is that she did test positive for lyme antibody - I do not. Although I've had lyme's disease at least three times that I can remember, all were treated promptly and I have tested negative on every titre. I realize it's entirely possible that this could still be an issue, so I mentioned it to my neuro at Hopkins.

I'm SO cold today - no matter what I do - so so so cold. Having tremors - pain is at least a 7.

Thank goodness I don't have to cook dinner today - I'd likely kill us the way the day is going.